Today I will post this short note about the (OHBDA) website and events. As some may know, quite a large number of Omani’s suffer from one or more hereditary blood disorders, mainly: Sickle Cell Disease, Thalasimia, and G6PD. Personally, there are many (almost all) of my immediate cousins have G6PD. Poor kids have to control what they eat, but they are all okay.
I know many people who suffer from sickle cells and others who are carries. It is definitely not a fun disease to have. It controls many aspects of your life including who you marry. One of my friends was engaged to someone and they had a wonderful relationship, only to find out that they were both carriers of sickle cell. It was heartbreaking to see them split up because of it.
So, I would like to show my support to the Oman Hereditary Blood Disorder Association (OHBDA). Um azzan talked about them here, and they have a blog and a facebook page. Further, they are holding an event on the 19th and 20th of June, which is the world”s first Sickle cell day. It will be held in Muscat City Center, so please stop by and support the organization.
MANY suffer from G6PD in my family.
There was an event at SQU and my friend did a pre-marriage blood test and found that he has G6PD as well.
where can I get that test done ??
We really appropriate your support in raising awareness about our association. I am an active member in this association with Sickle Cell Disorder & 2 carrier kids (God Bless Them)